"Tell Me About Your Child": A Grounded Theory Study of Mothers' Understanding of Language Disorder.

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  • Additional Information
    • Affiliation:
      Department of Communication Sciences and Disorders, The University of Utah, Salt Lake City
    • Subject Terms:
    • Subject Terms:
    • Abstract:
      Purpose: The purpose of this study was to generate a theory grounded in data explaining caregivers' understanding of their child's language disorder and the perceived role of speech-language pathologists in facilitating this knowledge. Method: This study employed grounded theory as a conceptual framework. Qualitative data were generated based on semistructured interviews conducted with 12 mothers of children who had received speech-language pathology services. Results: The following themes emerged from the data analysis: (a) Many mothers reported receiving confusing or irrelevant diagnostic terms for language disorder, (b) mothers of children with language disorders were distressed about their children's language problems, (c) mothers did not always trust or understand their children's speech-language pathologist, and (d) mothers were satisfied with the interventions their child had been receiving. Mothers described their children's language disorder using a total of 23 labels, most of which were not useful for accessing meaningful information about the nature of their child's communication problem. Generally, mothers reported they did not receive language-related diagnostic labels from speechlanguage pathologists for their child's language disorder. Conclusions: Two theories were generated from the results: (a) Lack of information provided to mothers about their child's language disorder causes mothers psychological harm that appears to be long lasting. (b) Difficulties in successfully relaying information about language disorders to parents result in negative perceptions of speech-language pathology. Implications and future directions are discussed.
    • Journal Subset:
      Allied Health; Editorial Board Reviewed; Expert Peer Reviewed; Peer Reviewed; USA
    • ISSN:
      1058-0360
    • MEDLINE Info:
      NLM UID: 9114726
    • Grant Information:
      Funding for this research was provided by National Institute on Deafness and Other Communication Disorders Grant R01DC011023 awarded to Sean Redmond
    • Publication Date:
      20200518
    • Publication Date:
      20200520
    • DOI:
      http://dx.doi.org/10.1044/2020_AJSLP-19-00064
    • Accession Number:
      143187753
  • Citations
    • ABNT:
      ASH, A. C.; CHRISTOPULOS, T. T.; REDMOND, S. M. “Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder. American Journal of Speech-Language Pathology, [s. l.], v. 29, n. 2, p. 819–840, 2020. DOI 10.1044/2020_AJSLP-19-00064. Disponível em: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=143187753. Acesso em: 12 ago. 2020.
    • AMA:
      Ash AC, Christopulos TT, Redmond SM. “Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder. American Journal of Speech-Language Pathology. 2020;29(2):819-840. doi:10.1044/2020_AJSLP-19-00064
    • APA:
      Ash, A. C., Christopulos, T. T., & Redmond, S. M. (2020). “Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder. American Journal of Speech-Language Pathology, 29(2), 819–840. https://doi.org/10.1044/2020_AJSLP-19-00064
    • Chicago/Turabian: Author-Date:
      Ash, Andrea C., Tyler T. Christopulos, and Sean M. Redmond. 2020. “‘Tell Me About Your Child’: A Grounded Theory Study of Mothers’ Understanding of Language Disorder.” American Journal of Speech-Language Pathology 29 (2): 819–40. doi:10.1044/2020_AJSLP-19-00064.
    • Harvard:
      Ash, A. C., Christopulos, T. T. and Redmond, S. M. (2020) ‘“Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder’, American Journal of Speech-Language Pathology, 29(2), pp. 819–840. doi: 10.1044/2020_AJSLP-19-00064.
    • Harvard: Australian:
      Ash, AC, Christopulos, TT & Redmond, SM 2020, ‘“Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder’, American Journal of Speech-Language Pathology, vol. 29, no. 2, pp. 819–840, viewed 12 August 2020, .
    • MLA:
      Ash, Andrea C., et al. “‘Tell Me About Your Child’: A Grounded Theory Study of Mothers’ Understanding of Language Disorder.” American Journal of Speech-Language Pathology, vol. 29, no. 2, May 2020, pp. 819–840. EBSCOhost, doi:10.1044/2020_AJSLP-19-00064.
    • Chicago/Turabian: Humanities:
      Ash, Andrea C., Tyler T. Christopulos, and Sean M. Redmond. “‘Tell Me About Your Child’: A Grounded Theory Study of Mothers’ Understanding of Language Disorder.” American Journal of Speech-Language Pathology 29, no. 2 (May 2020): 819–40. doi:10.1044/2020_AJSLP-19-00064.
    • Vancouver/ICMJE:
      Ash AC, Christopulos TT, Redmond SM. “Tell Me About Your Child”: A Grounded Theory Study of Mothers’ Understanding of Language Disorder. American Journal of Speech-Language Pathology [Internet]. 2020 May [cited 2020 Aug 12];29(2):819–40. Available from: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=143187753