Adults with cystic fibrosis: spiritual coping with lifelong disease.

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  • Additional Information
    • Affiliation:
      Department of Pediatrics, College of Medicine, University of Cincinnati, Cincinnati, OH, USA
      Division of Pulmonary Medicine, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA
      Department of Internal Medicine, College of Medicine, University of Cincinnati, Cincinnati, OH, USA
      Department of Pulmonary, Critical Care and Sleep Medicine, University of Cincinnati Medical Center, Cincinnati, OH, USA
    • Subject Terms:
    • Subject Terms:
    • Abstract:
      Cystic fibrosis (CF) is a chronic life-shortening disease requiring significant coping. Spiritual belief relates to treatment behaviors. Little is known about spirituality's role in adults diagnosed as children, nor how it compares with adults diagnosed as adults. Adults over 18 years, diagnosed as children completed a questionnaire; some were randomized to also participate in an interview or daily phone diary to measure adherence. Qualitative analyses of 25 adults are presented. Participants reframed their disease as part of a Divine Plan, in which Divine assistance was conditional upon adherence. Linear regression models of spiritual constructs on airway clearance, nebulized medication, and exercise are presented. Adults diagnosed as children related spirituality to CF in ways both consistent and different from adults diagnosed as adults. Spiritual beliefs were related to adherence determinants and intentions. Increased understanding of the relationship between spirituality and health behaviors is important to providing person-centered care.
    • Journal Subset:
      Health Services Administration; Peer Reviewed; USA
    • Instrumentation:
      Profile of Mood States (POMS)
      World Health Organization WHO-5 Wellbeing scale (WHO-5)
      Brief spiritual coping (Brief RCOPE)
      International Physical Activity Questionnaire (IPAQ)
    • ISSN:
      0885-4726
    • MEDLINE Info:
      NLM UID: 8800764
    • Publication Date:
      20200406
    • Publication Date:
      20200418
    • DOI:
      10.1080/08854726.2020.1713647
    • Accession Number:
      142454841
  • Citations
    • ABNT:
      GROSSOEHME, D. H. et al. Adults with cystic fibrosis: spiritual coping with lifelong disease. Journal of Health Care Chaplaincy, [s. l.], v. 26, n. 2, p. 45–57, 2020. DOI 10.1080/08854726.2020.1713647. Disponível em: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=142454841. Acesso em: 2 dez. 2020.
    • AMA:
      Grossoehme DH, Cole AG, Lewis K, Stamper SM, Teeters A, Joseph PM. Adults with cystic fibrosis: spiritual coping with lifelong disease. Journal of Health Care Chaplaincy. 2020;26(2):45-57. doi:10.1080/08854726.2020.1713647
    • APA:
      Grossoehme, D. H., Cole, A. G., Lewis, K., Stamper, S. M., Teeters, A., & Joseph, P. M. (2020). Adults with cystic fibrosis: spiritual coping with lifelong disease. Journal of Health Care Chaplaincy, 26(2), 45–57. https://doi.org/10.1080/08854726.2020.1713647
    • Chicago/Turabian: Author-Date:
      Grossoehme, Daniel H., Adam G. Cole, Katrina Lewis, Sophia M. Stamper, Alexis Teeters, and Patricia M. Joseph. 2020. “Adults with Cystic Fibrosis: Spiritual Coping with Lifelong Disease.” Journal of Health Care Chaplaincy 26 (2): 45–57. doi:10.1080/08854726.2020.1713647.
    • Harvard:
      Grossoehme, D. H. et al. (2020) ‘Adults with cystic fibrosis: spiritual coping with lifelong disease’, Journal of Health Care Chaplaincy, 26(2), pp. 45–57. doi: 10.1080/08854726.2020.1713647.
    • Harvard: Australian:
      Grossoehme, DH, Cole, AG, Lewis, K, Stamper, SM, Teeters, A & Joseph, PM 2020, ‘Adults with cystic fibrosis: spiritual coping with lifelong disease’, Journal of Health Care Chaplaincy, vol. 26, no. 2, pp. 45–57, viewed 2 December 2020, .
    • MLA:
      Grossoehme, Daniel H., et al. “Adults with Cystic Fibrosis: Spiritual Coping with Lifelong Disease.” Journal of Health Care Chaplaincy, vol. 26, no. 2, Apr. 2020, pp. 45–57. EBSCOhost, doi:10.1080/08854726.2020.1713647.
    • Chicago/Turabian: Humanities:
      Grossoehme, Daniel H., Adam G. Cole, Katrina Lewis, Sophia M. Stamper, Alexis Teeters, and Patricia M. Joseph. “Adults with Cystic Fibrosis: Spiritual Coping with Lifelong Disease.” Journal of Health Care Chaplaincy 26, no. 2 (April 2020): 45–57. doi:10.1080/08854726.2020.1713647.
    • Vancouver/ICMJE:
      Grossoehme DH, Cole AG, Lewis K, Stamper SM, Teeters A, Joseph PM. Adults with cystic fibrosis: spiritual coping with lifelong disease. Journal of Health Care Chaplaincy [Internet]. 2020 Apr [cited 2020 Dec 2];26(2):45–57. Available from: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=142454841