The experiences of social and community participation of people with non‐traumatic spinal cord injury.

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  • Additional Information
    • Affiliation:
      Department of Occupational Therapy, Monash University, Frankston Victoria, Australia
      Department of Health and Medical Sciences, Swinburne University of Technology, Hawthorn Victoria, Australia
    • Subject Terms:
    • Subject Terms:
    • Abstract:
      Background/aim: Incidence of non‐traumatic spinal cord injury in Australia is increasing, which will result in more occupational therapists being involved in the rehabilitation of this group in the future. The profile of people with non‐traumatic spinal cord injury differs from people with traumatically acquired spinal cord injuries, and their long‐term health and well‐being outcomes are not known. The aim of this study was to explore the experience of returning to social and community participation following non‐traumatic spinal cord injury. Methods: Qualitative methods were used for this study. Semi‐structured interviews were conducted with seventeen people with non‐traumatic spinal cord injury who had returned home. Data were analysed inductively utilising the thematic analysis method. Results: The process of returning to social and community participation following non‐traumatic spinal cord injury was identified as occurring in three main stages: withdrawal; re‐emergence into society; and stability. Each stage consisted of adjustment and adaptation in a number of areas, including: the loss of independence; the experience of being out in public; social networks; participation in productivity roles; and expectations regarding satisfactory social and community participation. Many of the participants had developed or were developing strategies to adapt to the changes experienced in these stages. Conclusion: By using a qualitative approach, this study adds to the understanding of the adjustment process experienced by people following non‐traumatic spinal cord injury when they return to living in the community. Although findings parallel those of studies conducted with people with TSCI, there are some differences that may warrant alternative approaches from occupational therapists working with people with NTSCI. Such approaches include assisting people with NTSCI to modify their expectations regarding how they will participate in the community, assisting them to find new meaningful roles, and facilitating the development of new social networks to replace lost ones.
    • Journal Subset:
      Allied Health; Australia & New Zealand; Peer Reviewed
    • ISSN:
      0045-0766
    • MEDLINE Info:
      NLM UID: 15420200R
    • Publication Date:
      20190207
    • Publication Date:
      20200203
    • DOI:
      http://dx.doi.org/10.1111/1440-1630.12522
    • Accession Number:
      134466960
  • Citations
    • ABNT:
      BARCLAY, L. et al. The experiences of social and community participation of people with non‐traumatic spinal cord injury. Australian Occupational Therapy Journal, [s. l.], v. 66, n. 1, p. 61–67, 2019. DOI 10.1111/1440-1630.12522. Disponível em: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=134466960. Acesso em: 13 ago. 2020.
    • AMA:
      Barclay L, Lentin P, Bourke TH, McDonald R. The experiences of social and community participation of people with non‐traumatic spinal cord injury. Australian Occupational Therapy Journal. 2019;66(1):61-67. doi:10.1111/1440-1630.12522
    • APA:
      Barclay, L., Lentin, P., Bourke, T. H., & McDonald, R. (2019). The experiences of social and community participation of people with non‐traumatic spinal cord injury. Australian Occupational Therapy Journal, 66(1), 61–67. https://doi.org/10.1111/1440-1630.12522
    • Chicago/Turabian: Author-Date:
      Barclay, Linda, Primrose Lentin, Taylor, Helen Bourke, and Rachael McDonald. 2019. “The Experiences of Social and Community Participation of People with Non‐traumatic Spinal Cord Injury.” Australian Occupational Therapy Journal 66 (1): 61–67. doi:10.1111/1440-1630.12522.
    • Harvard:
      Barclay, L. et al. (2019) ‘The experiences of social and community participation of people with non‐traumatic spinal cord injury’, Australian Occupational Therapy Journal, 66(1), pp. 61–67. doi: 10.1111/1440-1630.12522.
    • Harvard: Australian:
      Barclay, L, Lentin, P, Bourke, TH & McDonald, R 2019, ‘The experiences of social and community participation of people with non‐traumatic spinal cord injury’, Australian Occupational Therapy Journal, vol. 66, no. 1, pp. 61–67, viewed 13 August 2020, .
    • MLA:
      Barclay, Linda, et al. “The Experiences of Social and Community Participation of People with Non‐traumatic Spinal Cord Injury.” Australian Occupational Therapy Journal, vol. 66, no. 1, Feb. 2019, pp. 61–67. EBSCOhost, doi:10.1111/1440-1630.12522.
    • Chicago/Turabian: Humanities:
      Barclay, Linda, Primrose Lentin, Taylor, Helen Bourke, and Rachael McDonald. “The Experiences of Social and Community Participation of People with Non‐traumatic Spinal Cord Injury.” Australian Occupational Therapy Journal 66, no. 1 (February 2019): 61–67. doi:10.1111/1440-1630.12522.
    • Vancouver/ICMJE:
      Barclay L, Lentin P, Bourke TH, McDonald R. The experiences of social and community participation of people with non‐traumatic spinal cord injury. Australian Occupational Therapy Journal [Internet]. 2019 Feb [cited 2020 Aug 13];66(1):61–7. Available from: http://search.ebscohost.com/login.aspx?direct=true&site=eds-live&db=rzh&AN=134466960